Completely Fearless wasn't built as a brand, it was born with our little warrior Wyatt.
A Warrior Born
At just 34 hours old, Wyatt began his new life of being a warrior, born with a twisted bowel which was missed by professionals. Luckily, as his parents, we fought to be heard, and we were. Little did we know our whole life had changed in a way we could never have prepared for as we put our hands inside the box where our precious boy lay, touched his hands, and said we loved him, not knowing what would come next after the surgeons told us they were having to "open him up to see what's wrong."
Wyatt spent months undergoing life-saving exploratory surgeries. He showed us what true strength can do and what it means to be Completely Fearless. Whilst living in hospital, he was diagnosed with Cystic Fibrosis, and some of his surgeries resulted in him having Short Bowel Syndrome.
It is safe to say Wyatt's first 3 months in this world were the scariest 3 months of our life. No matter how much support, reassurance, and explanation we received, nothing softened the blow! We had to hold it together, we had to learn, we had to become not just parents to this beautiful gift of a boy but his carers, his voice, his nurses, his lifeline!
Finding the prettiest things in the mess
We also had to explain this to our 4 other children and do so in a way that ensured this was not the blow that it was for us, in a way that was not scary, and didn't make them feel that life had just changed forever. We wished there were resources out there to help us, but nothing seemed to be just the thing we were looking for. How do we explain this when we barely understand it ourselves? How can we reassure them when we have no idea if it will be okay, or what life looks like now? "I wish there was just a book that told the kids for us."
While we were living in hospital, I would sometimes scroll on Facebook (big mistake) and see all these parents with their new babies, meeting up with friends, everyone getting new baby cuddles, going for walks, laying on play mats, getting baths, and all the milestone cards to go with it. Meanwhile, I am looking at our beautiful baby with tubes and lines coming out of everywhere, having not held him for days, then weeks. It made me hurt so much that others could celebrate all these 'normal' things and we were simply celebrating every hour that something didn't go wrong, until it did again and again and again. At first, it felt like a cruel joke, we should be celebrating milestones like everyone else. But I realised we were celebrating milestones, just in different ways and without the cards to mark the occasion. We were celebrating every surgery, every successful line flush, every gram of weight gain, every single breath!
Welcome to the land of Beautiful Chaos
Then things got a little better for a short while and we were able to move onto a ward from intensive care. Amazing! This is fantastic! We can finally start to look after our baby! We can hold him, feed him, change his nappy. Amazing, YEY! But wait, it's not just a nappy, it's a stoma bag too. It's not just feeding, it's enzymes too. It's not just holding him, it's holding and supporting lines too... endless visits from nurses, consultants, surgeons, dieticians, physiotherapists, gastro doctors, respiratory doctors you name it, they were actually lined up outside our hospital room waiting their turn to come and see us every day with a thousand questions. And to every answer, it was, "Erm, 6... no, 7... I think," "Erm, yes... no, wait, that was yesterday." Questions about nappy/bag changes: how many times, consistency, colour, bottles, vomits, coughs, physio, breathing, routines, meds, and so much more. Why was there nothing for us to fill out to keep track of this, just like a quick tick-box page? Yes, we could have written it down on a notepad, but our day was filled with everything else. One nurse said we were the busiest family in the ward, how could we find time for paperwork?
Even when we eventually got home, there were no more doctors queued up outside our door, but life still seemed just as busy. Getting used to life as a medical family is no easy ride! (Who knew you actually have to make up your own medications? They don't all come ready to give like they do for one-off prescriptions). And lo and behold, at our first clinic, there they were again, all of those same questions. But now we don't just have to try to remember the last 24 hours, it's the last week, the last two weeks, the whole month. "I need a journal to keep up with Wyatt."
So I made resources so that we could use them to make our life that little bit easier, to help our kids feel reassured, and to celebrate our little warrior Wyatt!
And now I am sharing these so that you can do the same with your little warriors too. And that's why and how Completely Fearless was born 💜